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I found a lot of mobility equipment on Amazon here in Australia 😊

My mobility aids have been so expensive ahh

Just curious is that band on your arm for your heart rate? Just wondering as I've got POTS and saw something online that looked similar 😊

OMG - I hope recovery is nice to you!! ❤

Glad i fund you back👍😇🙏

Great gadgets. I use a small food processor so easy to handle and clean and buy already cut veggies.

Thanks for sharing. Excuse my ignorance, but i thought in your country there was free medical? Why pay for therapy then, or is that not so? Tx.🙏

Ar my childhood pool there was a chair that lowered but way less high tech than this one! It's cool to see that the technology for pool lifts is getting upgraded!

I can definitely recommend sit skiing (Winter Games) with an instructor. It was like being set free and carving turns was pretty easy if you’re used to shifting your weight in your wheelchair. The Snow Centre in Hemel Hempstead has dedicated instructors for disabled skiers xxxx

Really interesting seeing the pool lifts.

Cool cycling options and top notch pool facility too!!! Wow. So happy for you. ❤

Fucking thank you! And fuck the old ppl who stare at me for using a mobility scooter in the grocery store. YES, SUSAN I CAN BE PRETTY, DISABLED AND YOUNG AT THE SAME TIME. MIND YPUR WRINKLY BUSINESS

I needed this!❤ THANK YOU!!!

So, Karen is a... confused man?

Just discovered at 25 my joint range of motion isnt normal wtffffff

This is AMAZING! I'm just at the very beginning of my EDS/POTS journey (my doc didn't want to diagnose it for the longest time) and had no idea about the thumb/joint details! I'm going to look for possible aids covered by my state insurance since I'm unemployed and seeking disability, but I may have to save up for one of those canes 👀 Thank you for this! Especially the sleep hacks, sleep is hard!

This was so helpful, thank you so much for making this video 🙏🙏🙏

Also charity shops, I often see walking sticks and walkers/rollators - obviously (as with anything second hand, you don't always know the history/condition of items, so it's worth checking over)

Buying 2nd hand, you have to be careful about who owns it; the NHS owned the first 2nd hand chair I tried to buy. you have to look for an NHS tags or any other group before you pay. All with Access to work, and Motability you have to work out who owns it as well, I have had not 5 NHS chairs where I am how long it takes is defind by 2 main time, the time it takes to make, (for invacare this is 6 to 12 weeks) and the other part is when you case get to the top of the list in the monthly meeting. I have had 1 chair order the same day the OT saw me; I have other chairs that have taken a few months to get to the top of the list. How many chairs get ordered in a month depends on the time of year; if you get seen in May, you are more likely to get it quickly than if the OT see you in March. You also depend on where your chair is made. In most of the EU, not much gets made in July and August, as they are all on holiday. In China, I think it's February.

This could not have come at a better time for me 😭 thank you, thank you, thank you!!

A similar but around 6K cheaper version of the Omeo is the Genny Mobility Genny Zero which was at Motability's Big Event at the NEC in 2024. I've had a Pride Revo 2.0 boot scooter since 2018. I gave up on Motability as neither the car dealership, Citroen nor Motability would remove the bulkhead from the latest Berlingo so that I could fit my scooter in the boot. Instead, I got a bank loan & bought a used 2018 Berlingo got Jeff Gosling to fit a hoist and now I can travel independently again. It's not been cheap but I'm using my PIP to pay off the loan which is what it is intended for. To put it into context, the Berlingo + hoist + scooter is less than an Omeo. The revo 2.0 doesn't do off-road very well and I guess that's my next upgrade. Excellent videos Jenni, I've subscribed. Can't wait for Naidex 2025. I didn't know about it till going the Big Event.

Jenni, have you done a video on your zebra outfits? I have been super wanting one for a long time and Id love to gorge on reccomendations! That suit fit you’re wearing toward the end is fabulous 🎉

Should I approach GP or council for items like a shower seat?

If I need mobility aids later in life, I will be more optimistic after seeing you and others talking about what you think are helping.

My rheumatology team refuse to assess me for HEDS because I have a diagnoses of Neuro-Behcet's (vasculitis). Their reasoning was "it won't make any difference to your life or treatment" it made a heck of a difference when I needed a hysterectomy following pregnancy and traumatic childbirth. My obs/gynae consultant said my need for a hysterectomy was directly as a result of my hypermobility. There is a LOT of hypermobility in my family and extended family. I am now in my 40s and every time I bring up EDS it is either dismissed outright or as above, I'm told "why does it matter" etc. I do best I can to look after my joints and skin but I feel badly let down. There are definitely issues I experience which are not as a result of my Behcets and are not related to my being Autistic either. There are definitely some overlapping features though!

The Mind Body EDS site has a message that it isn't accepting applications for grants atm.

Access to Work can really help for some individuals but there is a big gap in support for voluntary workers.

I’m absolutely desperate for a new powerchair 😭 my 2nd q50r is failing on me. I’m still paying my dad back for this one .

I've had a manual chair from wheelchair services. When I desperately needed a power chair (when I lost a lot more arm and hand strength) when i was 6 months pregnant, wheelchair services told me it would be over 12 months. I HAD to have a power chair to get me through the rest of my pregnancy and whilst taking care of a newborn/baby/then toddler! I was really fortunate that I applied to a community grant fund and they actually funded the entire cost of the chair and super quickly! (2 weeks!!) When I needed to replace that chair 2 years ago, I bought a 2nd hand one off eBay, from a mobility company. It wasn't ideal and wasn't entirely as advertised, but it's still going. It plugged a gap and now I'm grant fund seeking again for my 3rd power chair!

The bad thing about trying to pay for a session technology. It’s not insured he can’t even get hearing on an insurance policy.

Really great breakdown of the options available Jenni! If people have questions on fundraising etc happy to answer on that too, maybe in a follow up video we could do

I don't know about the UK but make sure you get the longest warranty you can on any powered mobility device. My $50k aud power chair only 2 months out of warranty with about 300 hours had a major drive failure and warranty denied other than leaving me stuck . Is going to cost a fortune to get it repaired. Insurance doesn't cover it only covers for accidents and recovery. The joy of been a tad broken and getting stuck between a rock and hard place

Super helpful Jenni - thank you 🪻

Reason number 1435 that I want to get a Cricut 😅

Why does Facebook not allow people to sell wheelchairs? Is it supposed to be a safety thing?

Thanks for the incredible video! How do you avoid wrist pain when walking with a cane? Do you wear wrist braces when using them?

Love the wheelchair in bed :))

Hello Jenni 👋 Today I will be finding out who you are because you are in my ppl! However, I am told I experienced 2 siezures last week and subsequently I do not remember you... Hope you are well 😊

Thank you 🤍🖤

Your video was really helpful! Thank you. I’m in Canada, but you have given me great ideas on what to look for…I’m getting a walker/roll at or soon, and eventually a motorized scooter…of some kind. So I really appreciate your video. Thank you!😊

What did they do for your cfs leak? I have this from empty sella syndrome. Also brain aneurysm.

Brilliant collection of hacks, thank you from a drained & zonked out zebra!

I would love to hear more about your experiences using a hoist please! The electric rollz looks so cool, I wish I knew about it sooner!

My and my tailbone pillow have never felt so seen 😂

Great video 😊

Your pup looks like my sons dog, such a cutie

These look lovely, unfortunately a bit too expensive for me though 😢😢❤❤

I didn’t know anything about EDS or HSD until recently and I’m convinced this is what has been going on with me. My whole life I’ve had many injuries,pain,my joints not feeling like they’re in there properly and things going on with mult body systems. Also just found out I have a chiari malformation and diagnosed with ASD&ADHD this year. Will be going to EDS website and looking for doc in my area. Thank you for all the info!!

I've struggled a lot and was embarrassed to ask for help but ive eventually got an OT assessment happening and will receive a rollator to help me get around. I currently have a stick and don't care what people think. I have reduced mobility and would be stuck at home every day without my aid. I have also qualified for a diabled bus pass so hopefully I'll get out more

It's so important to share what does & doesn't work on holiday, so thanks for sharing, hopefully it encourages places to improve facilities 😊